What an amazing journey we have had in the past 10 years. We raised over 280 special children and currently providing services...
We’re Building Strong Individuals
One of the greatest strengths of special education is to educate, rehabilitate and advocate for special needs children.
Special School for Disabled and Rehabilitation Center
Special School – Rebahilitation Center – Research Institute
Journey of SSDRC.
Access to special education and rehabilitation services for people with ASD has been severely limited. Majority of parents of ASD in Nepal are unaware, illiterate, poor, unskilled and untrained. They are unaware of their inherent rights and often depend on their family members for support. Deprived of education, training and opportunities, they have remained economically inactive and are usually considered the burden of the family, the society and the nation. There is lack of access to employment, entertainment and services provided by the state because of their limited training in labor skills and education. Without proper diagnosis and awareness, ASD children do not have access to rehabilitation services. Increasing awareness among the parents living in the rural and slum areas about the various education, training, and rehabilitation services offered to them has also been a huge challenge.
SSDRC is the pioneer and only special school that provides education and rehabilitation services to the Children with Autism Spectrum Disorder (ASD) in Nepal.
Special School for Disabled and Rehabilitation Center (SSDRC) is a non-governmental and non-profit making, registered center for Children with Autism Spectrum Disorder (ASD) that was established in 2010 to provide special education, Therapeutic and related services from deprived family of Nepal. It was founded on the belief that each person with Autism Spectrum Disorder (ASD) has the capacity for growth and development, a right to services that enhance well-being, quality of life, and opportunities to learn. This is the pioneer organization working for the children with ASD and providing the related services to special need services to adult as well. This center is in Pepsicola area of Old Sinamangal, Kathmandu. It is running under the leadership of Social Activist Miss Sabita Upreti, the Founder and the Executive Director of the Center.
45 people with ASD getting direct services of special education, rehabilitation and vocation training right now and 26 staff members including a team of teachers, learning support assistants, speech and language therapists, occupational therapists,ABA Therapist and psychologist, Physiotherapist are working with children. Above 280 pulse ASD already had got services from SSDRC among them two youth with ASD are working as a teaching assistant in SSDRC and 36 children are included in mainstream School.
What is Autism.
Autism is a form of disorder related to brain development. The disorder is characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviors. Although the disorder may present at very early ages of children, the most obvious symptoms tends to emerge between 2 and 3 years of age.
and affects the brain’s normal development of social and communication skills. However, it was identified in 1943 by Dr Leo Kanner, Under the Autism Spectrum Disorder (ASD), there are other sub groups: Autism Disorder, Asperger syndrome, Rett syndrome, Childhood disintegrative disorder and Pervasive developmental disorder not otherwise specified. Children of this condition exhibit different characteristics and demand different behavioral treatment. The cause of autism could be hereditary as well as both environmental and genetic factors. Although there is no known cure for autism, early diagnosis and subsequent intervention with proven behavioral therapy can greatly improve the outcomes in later stages of growth. If this condition is identified prior, their behavior can be modified earlier.
Autism in Nepal and Family Struggle.
Being born with ASD is both devastating and challenging for a person. The severity is exponentially so when a Nepali is born with disabilities. Children with ASD are not only severely discriminated against and excluded from the society; they are also often deprived of the necessities such as education and many other basic human rights. There is not much support and intervention by the state for the families with ASD children and in almost all the cases, the parents of the ASD are burdened with the long-term management of their children.
Although distress of children with ASD is prevalent in all communities, those born into families with medium to almost no income are the most vulnerable and are at a greater need for assistance. As these families are often struggling just to obtain basic food and shelter, they cannot afford the time to take care of their children nor can they afford the costs associated with sending these children to specialized schools.
Despite strong efforts to increase awareness among parents to provide education to their children, not much has been achieved. This is partly due to the fact that there are not enough specialized schools that offer specialized education tailored to the needs of ASD. Another reason why there has been so little involvement of ASD children in the education system is because people of lower social economic status simply cannot afford the cost of education, therapies and many times think that it is simply a waste of money. Further, many NGOs have the impression that ASD children should be taken under the care of the state and subsequently are often very reluctant to invest in the education and training services for the ASD.